POTS and pain

POTS: A Trauma-Sensitive Approach

Recovering from POTS can feel like a mountain to climb, and for many, it’s made even harder by past trauma.

Trauma could be emotional, physical, or even the result of repeated experiences of not being believed by medical professionals.

Unfortunately, traditional “do this plan, stick to it” rehab approaches can unintentionally make things worse for someone dealing with both POTS and trauma.

Why Trauma Matters in Recovery

Trauma changes how we feel safe in the world—and in our own bodies.

David Emerson, in his book Trauma-Sensitive Yoga, explains that trauma survivors often feel unsafe when being told what to do, especially by an authority figure like a doctor or trainer.

For someone with POTS, being handed a rigid exercise plan with no say in the process can feel overwhelming or even triggering.

Instead of building confidence, it can ramp up stress and worsen symptoms.

The key is to give control back to you, the person doing the work.

A Smarter Way Forward: Patient-Led Experimentation

Exercise for POTS doesn’t have to follow a one-size-fits-all model. Here’s how a trauma-sensitive, patient-first approach works:

1. You’re in the Driver’s Seat

  • Every choice starts with you. You decide what feels safe to try, whether it’s gentle stretching, seated yoga, or just focusing on your breath.

  • The role of a guide or physiotherapist isn’t to tell you what to do—it’s to provide options and support while you explore what works.

2. Plenty of Options, No Pressure

  • Movement doesn’t have to look like “traditional” exercise. It can be as simple as lying-down cycling, a slow walk, or even sitting quietly and engaging your core.

  • If something doesn’t feel right today, that’s okay. Try something else. The goal is flexibility, not perfection.

3. Adjust in Real Time

  • Instead of sticking to a strict plan, give yourself permission to adapt. If something feels like too much, scale it back. If something feels good, lean into it a bit more.

  • This moment-by-moment approach builds trust in your body and helps you reconnect with what it can do, without overwhelming your system.

Recovery is Personal, Not Perfect

Getting better from POTS isn’t about sticking to someone else’s plan—it’s about rediscovering what your body is capable of, one small, safe step at a time.

This isn’t linear, and it isn’t always easy.

But with a trauma-sensitive approach that puts you in control, recovery can feel less like a battle and more like a partnership between you and your body.

Your journey is yours to lead. Start where you are.

Move at your pace.

And remember, every small step forward is progress.

Reference

Trauma-Sensitive Yoga in Therapy: Bringing the Body into Treatment

Pain and POTS

Why Even Small Exercises Can Feel Overwhelming: The Science Behind Your Pain

If anyone’s ever dismissed the pain or fatigue you feel after the tiniest bit of exercise as “all in your head,” let’s stop right there.

Science is on your side, and Bud Craig’s homeostatic model of pain explains exactly why this happens.

It’s not about muscle damage or injury—it’s about how your body manages (or struggles to manage) balance.

Why Does Exercise Feel So Hard?

Craig’s research flips the old ideas about pain on their head. Pain isn’t just caused by visible damage like tears or injuries—it’s your body’s way of saying something is out of balance. When you push beyond what your body can handle, even slightly, here’s what can happen:

  1. Inflammation
    Your body might react to exercise by kicking off an inflammatory response if it’s not ready to handle the stress.

  2. Metabolic Waste Buildup
    Exercise creates byproducts like lactic acid, which lowers the pH in your muscles. If your body isn’t conditioned to clear this waste efficiently, it can trigger pain and discomfort.

Why This Doesn’t Show Up on Scans

Here’s the frustrating part: modern medical technology isn’t designed to “see” this kind of pain.

There’s no visible injury or damage to point to on an MRI or X-ray.

Because of this, many people are unfairly dismissed by doctors, told their symptoms are psychological, or simply not believed.

This creates a vicious cycle:

  • Frustration and Emotional Burnout: Not being taken seriously is exhausting.

  • Stress Response Overload: Emotional distress ramps up your body’s stress system (the sympathetic nervous system, or SNS), worsening inflammation and pain sensitivity.

A New Way to Understand Pain: Nociplastic Pain

The kind of pain many people with POTS experience, especially after exercise, fits into a groundbreaking new category called nociplastic pain.

Unlike pain caused by injury (nociceptive pain) or nerve damage (neuropathic pain), nociplastic pain is driven by how the nervous system processes pain signals, even when there’s no visible tissue damage or structural issue.

This revolutionary definition validates the experiences of people with persistent pain, showing that their pain is real and rooted in biological changes—not in their imagination.

For people with POTS, this recognition can be a game-changer, offering hope and paving the way for better understanding and treatment.

Finding Your “Exercise Tolerance Window”

For people with POTS, exercise tolerance is like walking a tightrope.

Your body has a narrow window of what it can handle, and stepping outside of it—even a little—can trigger a cascade of symptoms.

When you exceed your threshold:

  1. The Fight-or-Flight System Kicks In
    Your SNS goes into overdrive, increasing your heart rate, inflammation, and stress hormones.

  2. Tracking Can Help
    Using tools like the ELITE HRV app, you can monitor your heart rate variability (HRV). A lower HRV means your body is in a stressed, inflamed state. Recognizing these signs early can help you adjust before things spiral.

This Isn’t Your Fault

Feeling this way after exercise isn’t a sign of failure—it’s your body telling you it needs to start smaller and slower.

Recovery isn’t about pushing harder; it’s about finding your unique window of tolerance and working within it.

Over time, with patience and the right approach, your body can learn to handle more without pushing back.

Trust the process, respect your limits, and know that your experience is valid—even if the medical world doesn’t always make you feel that way.

Resources:

A new view of pain as a homeostatic emotion

Nociplastic Pain